Posts tagged NiCU Families
141 | Forged in the Storm - Letitia & Brandon Gordon

Letitia and Brandon Gordon discovered they were expecting their second child when she was in nursing school. She found herself in a season of busyness and wanted to complete as much schoolwork as possible while managing her own business and their family.

Much to their surprise, Letitia started noticing signs of labor when she was 28 weeks gestation. After informing her doctor of her concerns, her provider assured her that it was not labor and shouldn’t be concerned. Her doctor was dismissive; that’s a common issue when we talk to Black women who have had complications in their pregnancies and labor. Unfortunately, Letitia was right; she was in labor and would report to the hospital the next day. Fear and panic kicked in, and her husband was a steady source of comfort and grounding as they prepared to welcome their second son unexpectedly early.

Letitia’s birth experience altered her career path, as she planned to be a psychiatric nurse. She’s now a labor and delivery nurse, trained birth doula, and a midwifery student. She brings hope, comfort, and support to expectant families with her own lives experiences and skills.

Letitia opened up about a new battle, breast cancer, during our interview. She is undergoing treatment and maintaining her family and professional responsibilities. Many of you know the toll that cancer treatment can take on a family and their finances. We have an ask - if you feel moved to support Letitia and her family, please listen to her birth story, and donate to her GoFundMe account.

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123 | Living the Promise - Carrita Flie

Carrita Flie graciously opened up to us about both her miscarriages and birth. This was the first time Carrita shared the details of both her traumatic losses and one amazing blessing. Due to her history, her third pregnancy was heavily monitored. She worked with maternal-fetal medicine in addition to a regular OB as she was considered high-risk. They discovered that her cervix had thinned at 21 weeks and had a cerclage placed to help keep her from delivering her baby early. It was difficult to hear that if her water broke during the procedure, there would be no life-saving efforts for the baby due to "point of viability" gestational age, which can vary from 20-24 weeks in different areas. Her planning was minimal as she could only focus on having a living, breathing child at birth. The plan was survival.

Carrita reached 26 weeks and attended her regular prenatal appointment, and it was without incident. When she arrived home, she started to notice regular contractions and eventually lost her mucus plug. She called her husband for support and was taken to the hospital. The nurse at the hospital immediately dismissed her concerns and denied that she was in labor. The doctor on call completed a cervical exam and confirmed what Carrita already knew. Carrita had reported to the ER three times before that day and was angered at how she could have been better served by the staff and possibly prevented the premature birth. She had a brief encounter with her baby after his emergency surgical birth by way of a resounding cry. He was whisked away to the NICU for care, and Carrita remained in the operating room with her health issues. It was traumatic as she felt everything happening to her body as her epidural had started to weaken. A Black nurse was present with her in the operating room that she credits as being an angel to her and kept her safe from potential harm as her doctor was trying to manage her care.

Postpartum was stressful as she was pumping for her newborn and studying for her finals in her postgraduate program. The NICU stay began snowballing as her baby battled respiratory issues and infections that led to life support measures. The road to recovery and healing would be long for both Carrita and her husband while they were both on their trajectories. The space to pause was delayed for over a year as their family managed the health concerns. Today, Carrita can see not only where she was but who she is now mentally and physically. Their son Isaac, named after the promised son to Abraham and is growing, healthy, and strong after enduring multiple surgeries and therapies.

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87 | A Mother's Work - Oriel McKinney

Oriel started her pregnancy as being relatively normal and without issues. Her and her husband prepared by taking all of the new parent classes with excitement and curiosity. Her story took an abrupt shift when her blood pressure started increasing, and she found herself being treated with medication and was not aware of the cause.

The issues with high blood pressure found her needing additional advocacy by her mother, an experienced nurse. Her mother refused to allow her daughter’s health issues to be brushed off or delayed treatment. She shared how her treatment shifted as her language matched those of the medical field. She was admitted to the hospital for further monitoring, which led to an emergency surgical birth at 33 weeks, as her baby didn’t pass the assessments.

Oriel had a feeling of Deja Vu as she carried her second child. Things were going well, and she treated herself to a maternity shoot as she surpassed the 33-week mark. However, she was met with more blood pressure challenges and needed to deliver her daughter just short of being full term at 36 weeks.

Challenges with preeclampsia marked both pregnancies and influenced some postpartum life changes that have led the way for a healthier life for Oriel. She shared her journey as a NICU parent and how she never paused for her healing, as is common for parents with special needs children. Now Oriel stands by scheduling time for herself and has the support of her partner to honor it. Listen in for a story about the incredible power of advocacy and resilience.

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85 |There is Always Room for Healing - Anese Barnett

When Anese and her husband found out they were pregnant, it was not only a surprise but extremely exciting. They were caught off guard when at ten weeks, her pregnancy would shift into high risk as she was diagnosed with a short cervix, making her susceptible to preterm labor. At 20 weeks, her doctor indicated they would need to make some serious changes to help maintain the chances of that occurring. These changes included strict bed rest and a treatment plan for a cerclage (cervical stitch) placed.

Anese would be met with the unexpected again, at 31 weeks when her water broke, resulting in a 2-week hospital stay, and at 33 weeks going into spontaneous labor. While labor wasn't long, pushing her son earthside did take an extended amount of time, and after 2 hours and birth vacuum assistance, she and her husband got to meet their 3lb baby boy. When reflecting on her experience, Anese shared that she was thankful to have had a birth team that gave her the space to try. Many plans for her birth had changed; she hadn't thought about that impact until she was in the moment having it all unfold. But her birth team made sure she was informed, and all options were considered.

This type of support would continue as her family adjusted to life in the NICU. After five weeks, they were able to bring their son home. And as they celebrate year two of his life, healing continues and is just beginning for some family members. The layers of healing have allowed Anese to create support systems for other mothers with her similar experience. It has created a deeper bond for her husband and son and created space for her father to share his experience. Lastly, it sheds light on just how impactful full family-centered and focused care can be.

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83 | Faith with Chance - Tia & Martino Gedeus

Tia described the moment when faced with an X-ray needed after a cough sent her to the ER. She was informed that it was cancer after a follow up with a pulmonologist. Leading her down a road of testing, treatment, and specialists. All moving at a fast pace to provide immediate treatment. Tia was diagnosed with Hodgkins Lymphoma, and she immediately felt herself come outside of her body. She began inpatient chemotherapy treatment for the cancer.They utilized all of the medications, including those that would cross through the placenta, because she didn’t just want to survive the pregnancy and raise her child.

Tia and Martino’s birth would culminate with an emergency surgical birth at 31 weeks pregnant due to the baby having repeated heart decelerations after mom passed a large blood clot. Their hospital stay was brief due to her weakened immune system, but she quickly returned the next day due to a fever that would later be determined as lung inflammation.

Postpartum was challenging, as one might imagine. Their family stepped in to visit Baby Chance in the NICU as Tia healed and Martino took care of her and their other daughter. Yes, the baby was named Chance because they gave him a chance at life. Tia and Martino’s story goes beyond birth; it is a testament to their faith, strength, determination, favor, and love.

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77 | New Bundle of Joy: A Different Path - Dalaine Bradley

When Dalaine found out she was pregnant with her third child, it wasn't something she was expecting and not something she was looking forward to. Her pregnancy came at a time when she was moving through a tumultuous relationship, work demands, and still trying to find her footing of being a mother of two. These stressors would show up in ways she wasn't prepared for - both mentally and physically. So much so that her doctor recommended she go on bed rest to slow down preterm labor hopefully.

Unable to follow those guidelines and find balance among it all, at 35 weeks, she went into spontaneous labor. With her baby being premature, ten-day NICU support was needed. During this time, Dalaine would begin the work of forgiving and healing herself - that even though her journey was bumpy, she still was the parent her daughter needed. Her daughter's birth taught her that to be the best for her children; she had to ensure she was being the best to herself!

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76 | A Journey Towards Healing: Motherhood After Loss - Alishia Anderson

This is a story about loss - In memory of Derek Jerrell Anderson Jr., aka DJ

Alishia Anderson shares that motherhood has stretched her in ways she didn't even know she could be stretched. That the lessons she has taken from her journey are that "motherhood is very unpredictable, and having living children is an underrated blessing!"

Her motherhood journey was turned upside down as within her first pregnancy at 28 weeks, during a routine ultrasound appointment, they discovered her son no longer had a heartbeat. Needing time to process, Alishia and her husband decided to move forward with induction for the next day. That evening they prepared to meet their son, researching what it meant to lose a baby this early, the name for their experience, and trying to gain some sense of what to expect. After three days of labor, she gave birth to her angel baby Derrek Jerrell Anderson Jr., aka DJ. The groundwork that a supportive nurse provided in helping her understand the reality of what postpartum would look like as a stillbirth survivor was something Alishia found to be fundamental in finding healing and also navigating becoming a parent again.

A year later, Alisha and her husband would add their rainbow baby Grayson to their family and their golden baby Gavin two and a half years after that. And each story bringing its twists and turns but embracing everything within them.

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58 | Story of Malachi: Living Through Loss - Crystall Boatwright

This is a story about loss - In memory of Malachi Cayden Boatwright

Crystall was 28 weeks before she found out she was pregnant. and there were some daunting concerns about the baby's health. They spent the rest of the day through testing and trying to process all the information. Malachi was born 7lbs, eyes bright and open taking in his parents. After some time in NICU, he transitioned with his father rocking and singing to him. Crystall is honest that it was tough and painful to try and go back to what was. As she put it, how do you explain to people what you went through and what you're going through - "There is no baby in me and no baby in my arms."

Crystall attributes that the place she is currently on her journey is due to finding community and other families that had walked in her shoes. Others allowed her to share her truth, all parts of it without question, and with lots of love. There is healing in community, there is support in community, and there is always space in community - in whatever capacity you may need it.

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56 | Stay the Course - Gabrielle Burks

From the beginning, Gabrielle and her fiance knew with the birth of their son; they were going to do things differently this time around. They hired a doula, hired a midwife, and began preparing for their homebirth. Yet seven months into their pregnancy, they were hit with the news that their midwife wouldn't be able to support them, and they had to go back to the drawing board. They visited different hospitals until they found one that felt right and enrolled in a nine-week intensive birth class. In this class, not only did they learn about childbirth but how to control their care, work with sand speak with their care providers to ensure that all decisions were based on and from informed consent. The lessons learned from this class would be vital in their advocacy and care during and after their son's birth.

Her son was born, but not breathing - care providers eventually revived him, but due to the length of time he was without oxygen, they were unsure if he would make it through the night. Gabrielle made that doctor eat his words, pray with her and her family, and demanded that no stone go unturned in her son's care. Her experience highlights the dark parts of birth, the parts we hope never happen, and yet it brings forth what can happen when you have the pieces to be empowered and use them fully.

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43 | Saul's Light - Kimberly Novod

This is a story about loss - In memory of Saul

With no early indication, in 2014, Kimberly and Aaron Novod's son, Saul, was born prematurely at twenty-eight weeks and six days. He was whisked to the Neonatal Intensive Care Unit (NICU). Initially, they thought he was going to do well and would be bringing their baby home. Yet, baby Saul passed after twenty days in the NICU due to a brain bleed. As a way to process through their grief and work on healing, Kimberly and her husband Aaron created Saul's Light. During their time of need, their community surrounded them in love and support, which was an integral part of their healing process. Thus, making it their mission to provide the same outpouring to all NICU and bereaved families. A vital part of the support provided to families is through mobilizing people, organizations, and resources directly from their community.

In the sharing of her birth story, Kimberly makes it clear and points that we cannot ignore the disparities that black and brown babies are overrepresented in the NICU and the graveyard. When parents are present for their babies and present in their care, they have better outcomes. Saul's Light allows for families to have that, responsive to the whole experience of NICU and also addressing infant mortality. It is a communal embrace, reminding families that their community cares about them, and they're not alone!

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